Nine months ago, the one true love of my life, my Barbara, passed away. The pain is only slightly less intense than it was in the first weeks. I was so busy then. There were two memorial services to plan, creditors (mostly medical) to notify, family obligations to be met. Friends we had not seen in months came out of the woodwork.
What’s happened since then? Continue reading
Originally posted at DailyKos, but everything I post there gets lost in overload.
Lupus kills. Today was Lupus Advocacy Day 2011. It’s too late for Barbara, but maybe we can save someone else. We need more research. Continue reading
That’s right. A state legislator in Texas has introduced a bill to instruct law enforcement to turn over custody of undocumented immigrants (“illegal aliens”) to members of Congress. (ht ThinkProgress). Continue reading
This past Tuesday, I started a very low dose of amitriptyline for my fibro, with instructions to “ramp up” the dosage as needed and tolerated. I started at 10mg, with instructions to increase dosage in 10mg steps up to 50mg per day. Continue reading
I know some of you are already rolling your eyes at the sugary sweet memory I am about to share, and some of you have no idea what is coming. Continue reading
Tell Speaker Boehner Who He Should be Crying For
Below, share your personal struggle with the healthcare system (anonymously if you prefer) or share other reasons for concern (like how millions will fall into poverty if Congress cuts Medicare) with Speaker Boehner.
Will You Cry for Me, John Boehner?
I shared my story, or is it Barbara’s? Continue reading
I tried to go out last night, and ended up totaling my car. And it wasn’t even really my car. It was Barbara’s car. At least that is what the title says. No one was hurt, but I was ticketed for failure to control speed. Fine is $270, which I can ill afford, now that I have no car. Life sucks a bit right now.
I know I have been AWOL for a bit. I’ve had some issues with fibromyalgia that have made it a challenge for me to even manage my IADLs. Sleep is still problematic. I’ve slept anywhere from 8 – 10 hours a day, and it’s still at least two hours after I wake before it feels like my head is clear enough to do anything. And of course, pain is a constant companion when I am up and about. I have to admit, I miss Cymbalta’s effect on my pain.
So, yes, I am still here.
I offer a version of the Prayer of Saint Francis, for those of us who see the Divine as feminine, that I worked up a while back. I did this for my own needs, but I think we need a national discussion, and this is my contribution. What happened in Arizona should not happen in this nation. Continue reading
It’s nothing new that I haven’t been going to sleep at what would be considered a normal time for me. For months now, I’ve slept between four and six hours a night on average, beginning between 1am and 3am. Before, when Barbara was at home, I tended to be ready for bed and asleep no later than about 11pm, and would sleep for eight to nine hours a night. Continue reading
